Skip to main content

Wisconsin Parent

Sheboygan Teen Organizes 5K Walk in Green Bay on May 30, 2015

Jan 23, 2015 08:33AM ● Published by Guest Contributor

Emily and her dad in Washington DC.

Emily Shelby, a Sheboygan teen who has Tourette Syndrome (TS), has made it her mission to educate her peers and lobby representatives in DC and Wisconsin to raise funds and awareness to combat bullying and misconceptions surrounding TS.  Emily is part of the one in a hundred American children that exhibit symptoms of TS and other tic disorders. TS remains a mysterious, under diagnosed and misunderstood disorder in the public eye. Its frequent portrayal in television and movies as a disorder marked by emotional outbursts and uncontrollable vocal obscenities, has only served to alienate those living with TS and has stunted efforts to accurately define TS as a neurological disorder, not an emotional disability.

Last year, in an effort to combat these misconceptions, Emily became a part of the Tourette Syndrome Association’s (TSA) Youth Ambassador Program, an initiative that trains youth to speak about Tourette’s and advocate on The Hill for legislation that will help increase federal and state research dollars for TS and create education programs within schools and communities to help raise awareness for the disorder.  While in DC last March, Emily was able to meet with Congress members and lobby for increased funding for the Public Health Education and Research Program on Tourette Syndrome at the US Center for Disease Control and Prevention (CDC).

During her trip she also attended a meeting where she lobbied Wisconsin representatives for additional state funding. After returning from DC, Emily developed a presentation to share with schools to educate fellow students and teachers about TS.  She has given speeches at the University of Wisconsin as well as a number of local school districts throughout the state.

TSA_WI_WebEventImageThis May Emily will be bringing her advocacy efforts to the Green Bay area where she is organizing a 5k walk to raise funds for TS awareness along with the TSA Wisconsin chapter.

http://tsa-wisconsin.org/event/05-30-2015/4th-annual-tourette-syndrome-awareness-5k-event

The all ages family fun event takes place on May 30th at 10am in Voyaguer Park.  The event also includes a scavenger hunt, face painting, bouncy house, children’s raffle, among many other family-friendly activities.  For additional information and/or to register for the event please email: tsawarenesswi@gmail.com

event Advocacy Tourette Syndrome TSA TSA Youth Ambassador Program Wisconsin Teen
  • Tour de Marsh

    10/22/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Community Art Project Exhibit

    10/22/2017
    01:00PM — 04:00PM

    The Community Art Project is intended to raise awareness of the visual arts by reaching out to th...


  • Tour de Marsh

    10/23/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Tour de Marsh

    10/24/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Hospitality Training 101

    10/24/2017
    07:30AM — 09:00AM

    Hospitality Training 101 Send your front line staff, receptionists, sales associates and other...


  • Mom's Unite Evening Meet Up

    10/24/2017
    06:00PM — 07:00PM

    Join us for a Mom's Group! Bring your kids or bring yourself! The choice is yours! Our Mom's g...


  • Tour de Marsh

    10/25/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Mom's Unite Morning Meet Up

    10/25/2017
    08:30AM — 09:30AM

    Join us for a Mom's Group! Bring your kids or bring yourself! The choice is yours! Our Mom's g...


  • Community Art Project Exhibit

    10/25/2017
    01:00PM — 04:00PM

    The Community Art Project is intended to raise awareness of the visual arts by reaching out to th...


  • Downtown Madison Family Halloween

    10/25/2017
    03:00PM — 06:00PM

    Join us for an afternoon of spooky fun at the Museum! Explore our haunted cabin, meet our hodag, ...


  • Tour de Marsh

    10/26/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Mom's Unite Active Play Meet Up

    10/26/2017
    10:30AM — 11:30AM

    Join us for a Mom's Group! Bring your kids or bring yourself! The choice is yours! Our Mom's g...


  • Community Art Project Exhibit

    10/26/2017
    01:00PM — 04:00PM

    The Community Art Project is intended to raise awareness of the visual arts by reaching out to th...


  • A DBDI After-Hours Social and Update will take place on Thursday October 26th from 4:30 - 6:30 at...


  • Tour de Marsh

    10/27/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Community Art Project Exhibit

    10/27/2017
    01:00PM — 04:00PM

    The Community Art Project is intended to raise awareness of the visual arts by reaching out to th...


  • Family Night

    10/27/2017
    06:00PM — 08:00PM

    Sponsored by Tony Pochowski with Midwest Financial, this month's Family Night will consist of a D...


  • Tour de Marsh

    10/28/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Grief Awareness Workshop

    10/28/2017
    08:30AM — 11:00AM

    Father Mike Erwin and Parish Nurse Ya-Fen Szczesny, of St. Katharine Drexel Paris...


  • Geocache Class & Hunt

    10/28/2017
    09:00AM — 11:00AM

    Looking for an adventure? Want to explore your community? Join us in learning all the details you...


  • Purpose Workshop

    10/28/2017
    11:00AM — 01:00PM

    Research shows that people who know their purpose and can clearly articulate it can add up to sev...


  • BDACT:Halloween Spooktacular Party

    10/28/2017
    08:00PM — 12:00AM

    Featuring an Escape Room, Music, Costume Contests, and showings of THE PIT (filmed in Beaver Dam)...


  • Tour de Marsh

    10/22/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Community Art Project Exhibit

    10/22/2017
    01:00PM — 04:00PM

    The Community Art Project is intended to raise awareness of the visual arts by reaching out to th...


  • Tour de Marsh

    10/23/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Tour de Marsh

    10/24/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Hospitality Training 101

    10/24/2017
    07:30AM — 09:00AM

    Hospitality Training 101 Send your front line staff, receptionists, sales associates and other...


  • Mom's Unite Evening Meet Up

    10/24/2017
    06:00PM — 07:00PM

    Join us for a Mom's Group! Bring your kids or bring yourself! The choice is yours! Our Mom's g...


  • Tour de Marsh

    10/25/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Mom's Unite Morning Meet Up

    10/25/2017
    08:30AM — 09:30AM

    Join us for a Mom's Group! Bring your kids or bring yourself! The choice is yours! Our Mom's g...


  • Community Art Project Exhibit

    10/25/2017
    01:00PM — 04:00PM

    The Community Art Project is intended to raise awareness of the visual arts by reaching out to th...


  • Downtown Madison Family Halloween

    10/25/2017
    03:00PM — 06:00PM

    Join us for an afternoon of spooky fun at the Museum! Explore our haunted cabin, meet our hodag, ...


  • Tour de Marsh

    10/26/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Mom's Unite Active Play Meet Up

    10/26/2017
    10:30AM — 11:30AM

    Join us for a Mom's Group! Bring your kids or bring yourself! The choice is yours! Our Mom's g...


  • Community Art Project Exhibit

    10/26/2017
    01:00PM — 04:00PM

    The Community Art Project is intended to raise awareness of the visual arts by reaching out to th...


  • A DBDI After-Hours Social and Update will take place on Thursday October 26th from 4:30 - 6:30 at...


  • Tour de Marsh

    10/27/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Community Art Project Exhibit

    10/27/2017
    01:00PM — 04:00PM

    The Community Art Project is intended to raise awareness of the visual arts by reaching out to th...


  • Family Night

    10/27/2017
    06:00PM — 08:00PM

    Sponsored by Tony Pochowski with Midwest Financial, this month's Family Night will consist of a D...


  • Tour de Marsh

    10/28/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Grief Awareness Workshop

    10/28/2017
    08:30AM — 11:00AM

    Father Mike Erwin and Parish Nurse Ya-Fen Szczesny, of St. Katharine Drexel Paris...


  • Geocache Class & Hunt

    10/28/2017
    09:00AM — 11:00AM

    Looking for an adventure? Want to explore your community? Join us in learning all the details you...


  • Purpose Workshop

    10/28/2017
    11:00AM — 01:00PM

    Research shows that people who know their purpose and can clearly articulate it can add up to sev...


  • BDACT:Halloween Spooktacular Party

    10/28/2017
    08:00PM — 12:00AM

    Featuring an Escape Room, Music, Costume Contests, and showings of THE PIT (filmed in Beaver Dam)...


  • Tour de Marsh

    10/29/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Trick or Treat in Beaver Dam

    10/29/2017
    04:00PM — 06:00PM

    The annual City of Beaver Dam "official" Trick or Treat event is always held the Sunday closest t...


  • Tour de Marsh

    10/30/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Tour de Marsh

    10/31/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Tour de Marsh

    11/01/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Senior Movie Matinee

    11/01/2017
    01:00PM — 03:00PM

    Introducing something new for our WISER friends (60 yrs +)! Every 1st Wednesday of every month, w...


  • Tour de Marsh

    11/02/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Leadership Luncheon

    11/02/2017
    12:00PM — 12:45PM

    Join us on Thursday November 2nd from Noon to 12:45 pm in the Chamber Conference Room for an educ...


  • Kids in the Kitchen & Movie Night

    11/02/2017
    05:00PM — 09:00PM

    Attention Moms and Dads! Here’s a great opportunity to have some fun with your kids and help them...


  • Books & Beer with Author Sara Dahmen

    11/02/2017
    07:00PM — 08:00PM

    Join us as we talk with author Sara Dahmen about her historical fiction series which begins with ...


  • Tour de Marsh

    11/03/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Scrapbooking

    11/03/2017
    06:00PM — 10:00PM

    Love to Scrapbook? Looking for some time with friends? Join us for a ladies scrapbooking evening ...


  • Arsenic and Old Lace

    11/03/2017
    07:30PM — 09:30PM

    Arsenic and Old Lace is a farcical black comedy by Joseph Kesselring made popular through a film ...


  • Songs We Love (Not Necessarily Love Songs) Featuring four part vocal harmony, the group has pick...


  • Tour de Marsh

    11/04/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Volunteer with Us

    11/04/2017
    09:00AM — 03:00PM

    Volunteers live longer and have greater well-being. That is why Blue Zones Project Dodge County i...


  • Story Saturday: Wisconsin Book Festival

    11/04/2017
    10:30AM — 11:30AM

    The Wisconsin Historical Museum is proud to partner with the Wisconsin Book Festival and the Madi...


  • Arsenic and Old Lace

    11/04/2017
    07:30PM — 09:30PM

    Arsenic and Old Lace is a farcical black comedy by Joseph Kesselring made popular through a film ...


  • Songs We Love (Not Necessarily Love Songs) Featuring four part vocal harmony, the group has pick...


  • Tour de Marsh

    11/05/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Songs We Love (Not Necessarily Love Songs) Featuring four part vocal harmony, the group has pick...


  • Tour de Marsh

    11/06/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Tour de Marsh

    11/07/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • A musical retrospective of the 1960’s is presented with the acclaimed Five by Design, known for t...


  • Tour de Marsh

    11/08/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Tour de Marsh

    11/09/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Tour de Marsh

    11/10/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Songs We Love (Not Necessarily Love Songs) Featuring four part vocal harmony, the group has pick...


  • Tour de Marsh

    11/11/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...


  • Chili & Soup Supper * Silent Auction Saturday, November 11 4 pm - 8 pm Serving chili and pota...


  • Songs We Love (Not Necessarily Love Songs) Featuring four part vocal harmony, the group has pick...


  • Tour de Marsh

    11/12/2017
    07:00AM — 10:00AM

    It is time to shake the cobwebs out of the Tour de Marsh kick-off ride and make it relevant for t...



Special Thanks to These Relaunch Partners


Woodman's Markets - Employee Owned
Greater Green Bay Convention & Visitors Bureau