Sheboygan Teen Organizes 5K Walk in Green Bay on May 30, 2015Jan 23, 2015 08:33AM ● By Guest Contributor
Emily and her dad in Washington DC.
Last year, in an effort to combat these misconceptions, Emily became a part of the Tourette Syndrome Association’s (TSA) Youth Ambassador Program, an initiative that trains youth to speak about Tourette’s and advocate on The Hill for legislation that will help increase federal and state research dollars for TS and create education programs within schools and communities to help raise awareness for the disorder. While in DC last March, Emily was able to meet with Congress members and lobby for increased funding for the Public Health Education and Research Program on Tourette Syndrome at the US Center for Disease Control and Prevention (CDC).
During her trip she also attended a meeting where she lobbied Wisconsin representatives for additional state funding. After returning from DC, Emily developed a presentation to share with schools to educate fellow students and teachers about TS. She has given speeches at the University of Wisconsin as well as a number of local school districts throughout the state.
The all ages family fun event takes place on May 30th at 10am in Voyaguer Park. The event also includes a scavenger hunt, face painting, bouncy house, children’s raffle, among many other family-friendly activities. For additional information and/or to register for the event please email: firstname.lastname@example.org